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Date de publication du document :
00/00/2010 |
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Date de saisie : 26/07/2010 |
Date de mise à jour : 27/07/2010 |
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Biobanks in Europe: Prospects for Harmonisation and Networking |
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| Contenu : |
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Biobanks (i.e. the organised collections consisting of biological samples and associated data, have gained great
significance for research and personalised medicine) are increasingly recognised as a crucial infrastructure for
research. However, at the same time the widely varied practices in biobanking regarding for example collection,
storage and consent procedures may also pose a barrier to cross-border research and collaboration by limiting
access to samples and data. In this context the limited sharing and linkage of samples is a key barrier for
research, such as pharmacogenetics. Wide variation is observed in the implementation of relevant existing
regulation, which may add further burden to harnessing the public health benefit of these collections. It has been
suggested that there is a strong need for a harmonised approach on biobanking practices and improved
networking of existing and new collections. The Report shows information on the extent of biobanking in Europe, collected through a survey of existing European biobanks regarding both technical aspects (e.g. storage conditions) and aspects of governance and ethics (e.g. sample and data sharing, consent procedures, collaborations etc.). In total, 126 biobanks from 23 countries in Europe were surveyed. |
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| Type de document :
Rapport |
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| Auteur(s) :
CCR ; IPTS ; Eleni Zika ; Eleni Zika ; Tobias Schulte in den Bäumen ; et al. |
Courriel de l'auteur :
jrc-ipts-secretariat@ec.europa.eu |
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| Institution :
Commission |
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| Pays :
Union européenne |
Langue :
EN |
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| Références du document : |
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LF-NA-24361-EN-C ; DOI 10.2791/41701 ; ISBN 978-92-79-15783-7 ; EUR 24361 |
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| Nombre de pages :
175 |
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| Mots clés :
Biobanque ; échantillon biologique ; recherche ; médecine ; condition de stockage ; gouvernance ; éthique ; réseautage |
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